State Agencies and Service Providers Come Together to Help People With Disabilities Find Meaningful Employment
The Tennessee Department of Labor and Workforce Development highlights initiatives aimed at expanding employment opportunities for individuals with disabilities, including those with rare conditions like Prader-Willi syndrome. The article emphasizes the importance of inclusivity in the workforce and showcases programs and partnerships designed to empower diverse talent. (tn.gov)
Harvesting Hope 5K
The Harvesting Hope 5K was created to raise awareness and funds for Prader-Willi syndrome (PWS) research and support. Inspired by a family's journey with PWS, this community event highlights the power of collective action in bringing hope and advancing resources for those impacted by this rare genetic condition. (harvestinghope5k.com)
PWS Black, Indigenous, and People of Color (BIPOC) Affinity Group
The PWS United Podcast highlights a conversation with Prader-Willi syndrome (PWS) parents in the BIPOC community, Dini Rao and Gennelle Conway. They discuss the experiences and challenges facing people of color within the medical and PWS communities, and offer recommendations to support inclusive advocacy. (spotify.com)
Jaden’s Story: Sleep Apnea
Follow Jaden’s journey as his sleep apnea diagnosis sheds light on additional challenges linked to Prader-Willi Syndrome (PWS). His story emphasizes the importance of specialized care and ongoing management to improve quality of life for individuals living with PWS-related conditions like sleep apnea. (hopkinsmedicine.org)
Advocating for the needs of Prader Willi Syndrome families
Explore how families affected by Prader-Willi Syndrome are advocating for greater awareness, support, and resources. This article shares personal stories and highlights the importance of community and legislative efforts in improving the quality of life for those living with this rare genetic disorder. (patientsrisingstories.org)
Pomona gas pumps put extra funds in Prader-Will charity when you fill up
Learn how a gas station in Pomona, NY, is helping advance research and treatment for Prader-Willi Syndrome through a charitable fundraiser. The event donates a portion of proceeds to support ongoing efforts in understanding and managing this rare genetic disorder. (lohud.com)