1:15,000 births

Occurrence of PWS1

350,000-400,000

Estimated people worldwide with PWS2

Age 1

The age nearly all patients are diagnosed by3

21-29 years

The average lifespan of people with PWS4

Meet More of the PWS Community

Trevor
Zahra
Aedan
Alexander
Kathryn
Alexis
Brayden
Atticus
Scarlett
Lia
Sofia
Shealynn
Laura
Kristy
Charlotte
Ellie
Olivia
Colleen
Atticus
Audra
Ayoni
Beckett
Bron
Cade
Caitlin
Caroline
Colin
Declan
Declan
Dominic
Eleny Maria

Spread Kind Words about PWS.




1. Lionti T, Reid SM, White SM, Rowell MM. A population-based profile of 160 Australians with Prader-Willi syndrome: trends in diagnosis, birth prevalence and birth characteristics. Am J Med Genet A. 2015;167A(2):371-378.
2. Butler MG, Hanchett JM, Thompson T. Clinical findings and natural history of Prader-Willi syndrome. In: Management of Prader-willi Syndrome, Butler MG, Lee PDK, Whitman BY (Eds), Springer, New York 2006.
3. Bar C, Diene G, Molinas C, Bieth E, Casper C, Tauber M. Early diagnosis and care is achieved but should be improved in infants with Prader-Willi syndrome. Orphanet Journal of Rare Diseases 2017; 12:118.
4. Bellis SA, Kuhn I, Adams S, Mullarkey L, Holland A. The consequences of hyperphagia in people with Prader-Willi syndrome: a systematic review of studies of morbidity and mortality. Eur J Med Genet 2022; 65:104379.