The PWS United Podcast highlights a conversation with Prader-Willi syndrome (PWS) parents in the BIPOC community, Dini Rao and Gennelle Conway. They discuss the experiences and challenges facing people of color within the medical and PWS communities, and offer recommendations to support inclusive advocacy. (spotify.com)
Follow Jaden’s journey as his sleep apnea diagnosis sheds light on additional challenges linked to Prader-Willi Syndrome (PWS). His story emphasizes the importance of specialized care and ongoing management to improve quality of life for individuals living with PWS-related conditions like sleep apnea. (hopkinsmedicine.org)
Explore how families affected by Prader-Willi Syndrome are advocating for greater awareness, support, and resources. This article shares personal stories and highlights the importance of community and legislative efforts in improving the quality of life for those living with this rare genetic disorder. (patientsrisingstories.org)
Learn how a gas station in Pomona, NY, is helping advance research and treatment for Prader-Willi Syndrome through a charitable fundraiser. The event donates a portion of proceeds to support ongoing efforts in understanding and managing this rare genetic disorder. (lohud.com)